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Will someone, suffering with Fibromyalgia, please describe your symptoms? What do you do or take for them?


Public Comments

1. Try magnesium.

2. I have had Fibromyalgia for a year my symptoms are it hurts when someone touches my legs and arms. I ache all the time and some days it even hurts to get out of bed. The only thing I take for it right now is advil. It does help some. My doctor has me on vicodin for it also but I try not to take them. There is a pill your doctor can give you for it if you can take it. I know its pain full it hurts worse in the winter time.

3. I was diagnoised in 1992. I used to take anti imflammitory meds but I can;t now because I get GI bleeds.
My symptoms are...pain pain pain all over my body. I have some very painful triger spots. I feel stiff and achey. I get fiber fog which is trouble concentrating becasue of exhaustion. I drop things. I can't sit, walk or stand for too long. Sometimes just having blankets on my body hurts. I get painful spots especially on my inner knees where I rub and rub until it is bruised.
My energy isn't what it used to be. my balance isn't good. It feels like every cell of my body hurts.
Take an expectorant. For some unknown reason Fibro patients have found it helps.
When I lived back east I went to see a doctor who is part of the best Fibro research in the country. I donated four inches of muscle and tissue for their research. This is what this doctor told me..they have found on autposies of F patiends that up their spine there are 3 to 5 more neurotransmitors in the spine....thus that makes us very sensitive to pain and other sensations,. The hypothalmus in the brain is over worked and thus sleeping is difficult. And a common pain like a cut can hurt 5 times more than the average person.
This just adds to the pain.
They have found that there are enzyme problems in the mitrocondrial part of the cells. (mitrocondrial is the energy center for a cell)
This is all very important findings because for so long fribromyalgia has been considered a womans disease caused by stress. Now it is real illness.

My symptoms started with my fingers being clumbsey. and achey. Then I noticed that when someone touched my arm while saying hello, my arm hurt.
I started feeling pains all over. And some pinpoint pains at what they call hot spots of fibromyalgia. When I was diagnoised there needed to be 11 tender spots to call it fibromyalgia. I have hundreds of spots that hurt. sometimes I feel like every fiber in my being hurts. Sometimes I feel like my eyelashes hurt.
It is a very painful disease. It is very important to keep mobil. Exercise slowly until building up a good balance of movments for your body. Swimming in a hot water pool is the best. When I was first diagnoised I was able to be very active. I did yoga, I swam daily except winter months, then swam at the gym a couple times a week. I walked 40 min. a day. I did stretches and floor exercises. All of this help the symptoms. Then one day I broke my leg and I got older and all my exercising became very difficult. My balance is bad and I have so much pain that I can no longer sleep in my bed it is too hard. I sleep on my couch with three down comforters on the couch.

Sleep is essential for your well being. Most people with Fibro take a sleeping pill of some kind and something for pain before sleeping. I take a nice hot bath before bedtime and that sure helps.

At times I get lidocaine injections at really sore spots.
Massage therapy is very helpful to move the toxins in the body that stay in the cells of the body which cause pain.

Best treatment
Balanced life
exercise
good nutrition
cut down stress
manage your time well
get sleep
do stretches
have a good doctor that understands the disease
hot tubs or baths with epson salt if you can
massage therapy if you can afford it
take meds for anti imflamitory, pain and sleep
Balance yourself emotionally
Manage your life well
Take the meds
have a knowledgable, kind doctor
Don't ever give up
Keep your body limber or you will be much worse off

4. magnesium may help general pain and fatiue--but not necessarily REAL FMS

anti inflammtaories are NOT a treatment for FMS as tehre is NO INFLAMMATION