...assuming your either have this disorder or know someone who does...
I have had "it" for 14 yrs and am surprised to find that it has been a very painful plus physical and progressively declining illness. I just would like to get more info from other sufferers...not necessarily from web sites, but from first-hand experiences and trials. Am considering writing a book about this from the perspective of the person and not just the medical community. Thank you for your input. Write as much as you want...I will read it, I promise.