Do u have or no anyone who has Fibromyalgia? and tried the new drug Lyrica for it?
I'm almost 26 and have had FMS for 5 yrs now. with the news of a medication specifically designed for FMS mnade me happy, however im afraid to try it..ive gotten so many mixed results from other meds n i can't go thru more experimental meds so im asking if anyone who has Fibromyalgia has taken the new drug Lyrica and how is it? also if u have FMS have u tried Kadian and Fenatyl and if so, how were they? thanks to all who seriously answer.....
thanx gilian, i'm afraid to take Lyrica becuz on meds ive overdosed, seized, puked, lose balance, lose memory, shake uncontrolable, jerk and lose appetite which has effected my weight! I take Tramadol for pain mixed with Zanaflex and Trazadone to sleep. Fioricet for migraines and plenty different multi vitamins. The only one that works is the Fioricet. The other pills only work on a high unsafe dose and mixed with tylenol or a vicadin.
thanx justme (under gilian) i to know FMS is not Inflammation but i didnt touch on that. i was worried about the weight gain from Lyrica. my worst pain is my wrists in the morning and ankles and top of feet, i can never just get out of bed n walk normally i have to work my way upright and walk on back of feet til the pain settles n i adjust but thats just a small portion of the many symptoms i have...thanks for the info!
Public Comments
1. Fibromyalgia is inflammation of the muscles, therefore first drug should be a anti-inflammatory. Once on that they should try you on Lyrica. Lyrica is for nerve pain, neuropathy, associated with the nerves misfiring. I have Rheumatoid Arthritis and FMS, so am on a anti-inflammatory, take evening primrose oil as prescribed free of charge by my Doctor, for Psoriasis and it also has a anti-inflammatory affect. Then they started me on Valium at night to stop any muscle spasms, contractions. When the Stigmata pain started in the middle of my palms and feet, they chose Lyrica. When the disc prolapsed and hit my nerve roots to my legs, they gave me Fentanyl. This concoction works extremely well and allows me to be mobile. However for me it is a balancing act, so my Lyrica is but 25 mgs along with 2mgs of Valium at night on going to bed. I find a good nights sleep the best medicine for FMS and RA. I am not sure why you are scared to try Lyrica? I know they tend to start on a high dose, but all my drugs are a low dose, but the combination works. You really have nothing to loose, so give it a shot but build up to the drug level. Start on 25 mgs and see how you get on. Best of Luck2. Fibromylagia is NOT INFLAMMATION
NO INFLAMMATION is a HALLMARK of Fibromylagia.
Fibromyalgia is NOT a form of arthritis or an actaul musculoskeltal disorder. The pain is only a symptom. The actual syndrome is believed to be a disorder of the central nervous system.
That is why Lyrica and Cymbalta have been approved to treat FM-they are neuro based drugs.
I have heard some people say Lyrica has helped them, but they couldn't tolerate the side effects (weight gain).
the most promisiing treatments help the brain regulate neurotransmitters (serotnin, norepinephran)
3. I have fibromyalgia and significant spinal issues. I tried Lyrica and after taking it for a week or more I felt as if I was virtually cured. I kept a log of how I felt every day that I took it. I had a side effect of having trouble finding words that was very annoying. Slowly but surely the Lyrica started losing its effects. I guess my body chemistry adapted to it.
I still take 100 mg a day because it does help my nerve pains which are zaps and zings from my pinched nerves. But I still have the all over body pain. I used fenanyl for years and years. It ruined my family life and social life as I became too lifeless and fatigued. In retrospect I found that it didn't help the pain that much anyway. We just kept raising the dose because the pain remained. Years later I started on a low dose ketamine nasal spray and was able to get off of the fentanyl effortlessly and completely. The ketamine works fabulously and I have my life back now. I can actually recognize myself when I look in the mirror! The morning pain is still agonizing until I can move enough to reach my ketamine spray. I wish they could make a time release version that you can take at bed time and starts working 6 or 8 hours later.
In my book its best to try any med that a doctor recommends. Just follow directions precisely.
Don't let fear run your life.
4. I have had Fibro for 10 years - the ONLY medication that has worked is Low Dose Naltrexone (LDN). I take 3mg. at bedtime every night and I started feeling better the first week!
Have your Dr. write you a Rx - I've had no insurance for years and it's only $15 per #30 pills monthly. You can google LDN and get quite a bit of information, Stanford U. is doing a study right now on LDN and Fibromyalgia - I've been emailing with them. You might want to change your diet (Detox first) Remove aspartame, msg, high fructose corn syrup and cut back on processed foods, sugar & sodium.
Add mostly fresh vegetables, fruit, whole grains & lean meats (fish, shrimp, chicken) And add WATER, flush out toxins daily by drinking at least 48 oz. of water every day. I'm currently filling up a 16 oz. bottle 5 times daily and it helps!
5. I was diagnosed about 1 yr ago. I'm 32. I'm on Cymbalta. I was on Lyrica for several months and it didn't help much but I've heard several people say they liked it. Lyrica made me gain weight which didn't help my condition. At first it made me feel very drugged, then after a week or so that feeling went away. I take Ambian and Tylenol PM at night to help me get a more restful and healing sleep. I haven't tried the others you mentioned. I also go to physical therapy 2 times a week and it helps a little. They teach me stretches, a few strengthening exercises and do massage. They also have a hydro-bed which is very nice. The main thing I have learned that helps is to get as much rest as you can. I have 2 kids so it's not easy but it's essential. I wear comfy shoes and try to stay somewhat active but don't push myself too hard or I'll flare. My rheumatologist suggested yoga which I plan to try. I hope some of this helps. I know it's frustrating but just know you aren't alone.
T.
