my fibromyalgia seems to be getting worse but I was told it doesn't advance. The pain in my back is horrific
I was told fibro doesn't advance but the pain has advanced terribly especially in my back. I am on Cymbalta and Lyrica and still have bad flares. I am also exhausted. Another drug?
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1. Fibromyalgia can flare up at certain times. Such as when you are sick with an infection, under stress, weather changes can effect you as well. Especially wet weather. You need to see your MD for other pain options. It also might be beneficial for you to contact a pain center for non-medicine related options.,2. Fibromyalgia is just a diagnosis given to someone which basically means "we don't know what the heck is wrong with you and why you keep telling us you hurt... we'll call it fibromyalgia". Sorry. You need to find another doctor or pain clinic who will seriously look into your back pain and figure out if you have disc problems, arthritis, nerve issues, or something else.
Good luck.
3. While fibro is not a progressive condition it can become worse over time as a result of lifestyle changes. Perhaps your diet has been poor or you have not been getting enough sleep or you are under more stress than usual. These are all external factors which can make fibro seem like it is worse when really it is just affecting you more because of these other factors. Try keeping a sort of journal for a week or two and you will see what sort of changes you cna make to your lifestyle which may be beneficial to minimizing your fibro flares.
4. technically, fibromylagia is not progressive--which simply mean there is no visable occuring damage to teh body--and it isn't fatal--
but the symptoms can get worse over time---I have gotten new sets uf symptoms periodically--
although many doctors use fibromyalgia as a catch all phrase for any pain--whether tehy can expalin it or not--
It is still a REAL DISEASE--and some people do have it.....
AND IT IS NOT JUST BECAUSE OF LIFESTYLE CHANGES?BAD HABITS-
I got significantly worse while engaging is appropriate axercise and eating a good diet.
CIDPUSA is a bunch of bull--IT INSULTS people with FMS-by sayign we have TEMPER TANTRUMS
first of all-FMS is Not autoimmune--2nd-I have had it fro 30 years and it has not progressed to myofasical pain syndrome
It goes on to say that all autoimmune disease are caused by INFLAMMATION--there is NO INFLAMMTION in FMS
I KNOW FOR SURE THROUGH MY OWN EXPERIENCE THAT SUPPORTS THE REPUTABLE RESEARCHERS-FMS is a neuro problem....
my symptoms were reversed when I had a seizure---my brain was reset------
there is a difference between fibro like symptoms due to a viatmin deficiency such as B12--and real FMS
5. Cymbalta and Lyrica are not treatments for Fibro. They are just a white wash type treatment.
If you want to get rid of the problem try this
http://www.cidpusa.org/FIBROMYALGIA1.html
6. There are few things more frustrating than suffering from an illness or symptom that no one else understands. Take chronic fatigue syndrome for example. Many family and friends of the patient simply don’t understand why their loved one, who appears to get plenty of sleep, can complain of feeling tired all the time. It isn’t uncommon for loved ones to accidentally make feelings of depression worse by accusing the patient of overreacting or embellishing their symptoms. That can lead to resentment on the part of the patient and even a decreased interest in caring for their own health. If you suffer from one of the chronic fatigue diseases or have a loved one that does, there are some places you can find additional information about these little understood disorders.
* Your doctor
* Online medical resources
* Specific disease organizations
For the most personalized and patient-specific information the best person to talk to is your doctor. He or she will be able to give the patient and their families, with permission, the believed problem, what will help with the fatigue, and ways for others to respond to and treat the patient. Sometimes all it takes is for a loved one to hear the words from a health care professional’s mouth to really get the idea of what is happening with their friend or family member. It is also helpful for the patient and their family to have detailed instructions for caring for the affected person.
You can’t take care of your condition correctly or explain it to others if you have doubts yourself about your problem. Doctors only have so much time to spend with each of their patients, so it may be necessary to take to the computer waves and do some research on the subject yourself. The biggest thing to watch out for is the respectability of the website you are trusting. The last thing that will help with any of the aspects of the illness is to get something about the treatment or cause of the disease incorrect. On the other hand, having a reputable source to quote to those who don’t understand is always a benefit.
If you have been diagnosed with a specific chronic fatigue syndrome, it’s far easier to get the information you seek. For example looking up fibromyalgia syndrome will give more specific results than a generic search for fatigue syndromes.
Source: http://www.fibrofruit.com/fibromyalgia/5-understandingfibromyalgiapain.html
7. I was told the same thing about it not being progressive. My Dr. said that I had been in the "onset" of FM and now I have "full blown" FM. There will still be flares which can last for quite a while. Make sure you get enough rest and stay as active as you can. I'm on Cymbalta. I was on Lyrica and it didn't help much but I've heard several people say they liked it. Lyrica made me gain weight which didn't help my condition. I also go to physical therapy 2 times a week and it helps a little. They teach me stretches, a few strengthening exercises and do massage. They also have a hydro-bed which is very nice. I wear comfy shoes and try to stay somewhat active but don't push myself too hard or I'll flare. I hope some of this helps. I know it's frustrating but just know you aren't alone.
T.
