Can anyone please help me with these symptoms? (very similar to lupus)?
rash under eyes, on arm, and on cheek (will go away with high dose steroids but always comes back right after) I have had the rash since early to mid december
headaches (daily)
always tired or lagging
sore muscles and joints
light nausea (sometimes)
past diagnosis of anemia
irregular periods since I was 16
unreasonably cold hands and feet
can never get comfortable, always too hot or too cold
bowel problems including
severe constipation
blood with bowel movement
up to 6 days with no bowel movements
oct 31st 2009 small bowel obstruction
weight fluxuation
trouble concentration (brain fog)
protein in urine and bacteria in urine
light stomach pain (now and then)
My mother has fibromyalgia and reinods phenomina
I just got a lupus panal blood test back and they are negative.. where do I go now? whats next?
Public Comments
1. go to wrongdiagnosis.com there are doctors at the Forum that can help u.2. makes me think of something autoimmune
try researching autoimmune diseases..
could also be a combination of 2 things-which makes a diagnosis more difficult
3. There really isn't a lupus blood panel unfortunately, which makes it difficult to determine if someone has lupus. There are a few blood tests you can do, but they are not lupus specific. I'm not sure how old you are but in my case I started having lupus symptoms when I was 15 and at the time my blood work looked fine, but by the time I was 19 they were able to determine that I have lupus. For people with lupus, receiving an proper diagnosis seems to be a matter of perfect timing, because of the way the disease basically comes and goes. I would keep working with your doctor to find treatments for the problems that you are experiencing and continue to do blood work every so often. Good luck!
4. Your doctor isn't curious about the protein in the urine? How much is your creatine clearance? This is an indicator of Lupus Nephritis (when Lupus attacks the kidneys). Many people with Lupus test negative for all of the blood work but still have Lupus. If you have kidney involvement..ie the protein in your urine, then you'll need a kidney biopsy to check for Lupus. You have many of the symptoms of Lupus. What does your doctor think. They obviously know that Lupus can only be ruled IN with blood work not ruled OUT.
5. There is no blood test for lupus. A diagnosis is based on history, symptoms, a lot of labs and after ruling everything else out. What tests were in your panel?
Regardless the protein and bacteria in the urine must be addessed and could be causing many of the other problems.
Blood in the stools could be a sign of a lot of things. This is also serious.
It's your life. It's your body. Stop trying to diagnose yourself and get your symptoms addressed properly.
