fibromyalgia support groups Knowledge Base
Does anyone else think that Fibromyalgia is a disability? I am in pain 24/7 and it controls much of my daily life. I have 3 kids and it is hard to care for them let alone myself. I have a injured right ankle that also prevents me from living a normal life so it is extra hard to live this way each day. I use braces for my ankle, hands, wrists and arms. I have used resources only to come up feeling empty I feel so alone in the world cause noone seems to understand just how disabling it is to be me. I am trying so hard to live a life and go to school so that my future is something worth living. I can't go to school full time so part time is as best as I can give and even then I am in so much pain and fatigue. I am on medications but they only help for so long. Does anyone else have a disabling illness and feel so alone in their daily life as well? I am so tired all the time. So sick of being sick, tired of being tired. How about anyone else? I am in my late 30's trying to accomidate for my many disabilities is so hard to do. Support group
Do I have Fibromyalgia? I have had muscle aces for about 10 yrs. It may have started 10 years ago. At the time my parents were elderly, lived 200 miles from me & I was stressed. I worked full time & traveled to help them on week-ends. I started to have sleep problems & took Ambion to help me sleep. I have continued to have problems sleeping. Muscle aces started about 7 years ago. My doctor said I had Fibro, gave me a NSAID'S prescription, sent me to a sleep clinic & a Fibro support group which taught relaxation. I started to have neck & shoulder pain. I had an x-ray which showed arthritis. The NSAID's medication almost stopped my other muscle aches. Then I lifted a heavy object & my back started to hurt & is stiff. My doctor retired & the new doctor has taken me off the NSAID medication because of the risks. Now I cannot hardly get out of bed in the morning. My neck, shoulders & back are very stiff. I shower & stretch & it is not to bad during the day. If I sit & try to get up, it comes back.
I have been diagnosed with Fibromyalgia & Lymphedema and am wondering if there is anyone else out there who? Has either of these and what your coping mechanisms are be it through medication, support groups (which I actually loathe) , treatment options and or dietary aids that enhance the manageability of these , either one mind you. Thanks in Advance Garbo P.S. I have connected online with a couple of sites, and I am not looking to have you wax your misery or hear mine....I made a Vow to my son last night..and I am not even steady to walk.....I will be running by the end of the year....I am THAT serious!!! I appreciate your consideration in advance! Garbo FYI~I HAVE posted this in another category...P&S seems to glean more answers and those are what I need right now. Iwould appreciate your not editorializing my methodology ~ Thank You.
Do you remember the story of the Princess and the Pea? Is there a site where I can find that story? I think the Princess had Fibromyalgia like me and if she ever DID get to sleep It was out of sheer exaustion. Please help me find the story I need it to make a little fun analogy for my support group nex week! Thanks :) lol thanks ...anyone else?
How do you treat your TMJ syndrome? What exercises? Any info. is appreciated.? My mother has severe TMJ and fibromyalgia. This morning she could hardly open her jaw. She is in severe pain. She is going to a doctor, and has been to all the support groups. I am wondering what you people with TMJ do to control the pain. I will pass the info. on to her. Thank you. (she wears a splint in her mouth also)
Tramadol withdrawal support? I have been taking the maximum dose of tramadol for about ten years. It was prescribed to me by my regular primary care physician for "fibromyalgia." At that time he told me that it was "non-habit forming" and not a narcotic, but that "they" really were not sure HOW it worked, just that it did. Flash forward ten years. I've taken between two and five of the 50-milligram tablets three times a day - EVERY DAY - for the last ten years. There have been times when for some reason or other I have run out, which is absolute HELL. The withdrawal is horrible and even a few hours late on a dosage causes severe bone pain, incredible fatigue, sweats, fever, diarrhea, depression, shakes, etc. Sometimes I feel like a heroin addict. I actually MUST have the tramadol in order to function at all. Yesterday, again, I almost ran out and had to go 16 hours without any. I couldn't get my prescription filled because the pharmacy said I was 20 days early for a refill! Perhaps having taken it for so long now I have built up some tolerance. I have found myself lying about "lost" pills, a teenaged relative "stealing" them, etc. I've gone to a few doctors and different pharmacies in order to be able to keep a constant supply. In other words, acting exactly like an addict. Also, I'm only 41, but taking tramadol for so long has ruined my teeth. It dries out the mouth and allows decay to set in. I actually have teeth that break off at the gumline as I eat french fries. I have already spent almost $8,000 on implants for the top teeth only - and I haven't even gotten to the bottoms yet. I am depressed about the situation, but I don't think I have the stamina to be able to quit alone. Is there a support group out there, or anyone who has successfully quit taking tramadol after a long period? I sure could use the help and support of people who know how tramadol acts and how it feels. I feel desperate about a time when I won't have it and what will happen. I don't know anyone else who has taken this drug and who understands the problem. Everyone says to just cut down and tough it out. Help!!!!!
Fibromyalgia? Let me tell you what has helped me. I come in here sometimes to see if anyone has asked about fibro. I have had fibro for over 12 yrs. I take Guaifenesin for my fibro. You have to learn how to take the med properly for it to work on fibro. Here is a book you need to get either from a library or you could get it at ebay or amazon cheaper than a bookstore. What Your Doctor May Not Tell You About Fibromyalgia by Dr. Paul St. Amand Here is the doctors website www.guaidoc.com Here is a website for more info and for an online support group for those who take guaifenesin... www.fibromyalgiatreatment.com It is not a cure and it is not a pain med but it has allowed me to stop taking prescription pain meds. I used to take them constantly. Check it out.
Need fibromyalgia/Cfs artist friendship/tips/help***!!!!? hi there i have had FMs ( fibromyalgia) for over 15 years now always had a dream of becoming a good artist but i have put it off for my whole life thinking that i will never be good enough as my 1st tries look so bad but coming to the point i wanna start gaining the skills to start fulfilling my dream i love cartoon style and pop art i love colour! and pattens i don't like realism! i like to be different just started to draw this week so am a baby to it will take a long time to get good i really need FMs/Cf's artist friends so bad for support i really want to start painting but worried that it would cause me so much pain that i will have to stay in bed unhappy and in pain as i have been on treatments that have given me over 200 pain free days and i walk 5miles a day as well its taken me a long time to get to this point i don't want to fall on my face in pain and crash i need tips on painting with FMs please??? what are the ways that i can paint that will not bring on FMs pain??? well hope i can make new friends here that are in that same boat as me i will be setting up a yahoo group this month for artists that have FMs and suffer from bad pain in there lives i will let you know when its set up add me as a friend if you would like to be part of my new support group for FMs/pain suffers who are artists its open to poets as well www.myspace.com/nicolesartsncrafts Nicole
HELP! I HAVE FIBROMYALGIA AND NOTHING IS WORKING? I've been diagnosied with Fibromyalgia and Chronic Fatigue about 6 months ago. I've been in extreme pain for over 5 yrs now and they've finally diagnosed me. I've been to every possible doctor and have tried Lyrica and many other meds but can't tolerate any of them. I'm now on Roxicodone thru my doctor at a clinic and I don't like being on these meds. This doctor doesn't know what to do with me because I'm in extreme pain, (often in tears). He thinks I may also have a soft tissue problem as well. I've had several operations on my leg, for other supposed problems, but now I'm wondering if all along, this has been my problem because I'm still in so much pain where they operated and the operations were supposed to take care of the pain. I live in Ft. Laud. FL and don't know what to do at this point. Does anybody out there know where I can go, what I can do, any support groups, etc.? I've been to Neurologists, Rheumatologists, Internists, Orthopaedics, etc. I've had MRI's of all my limbs and back, bone scans, needles stuck i me, and so on. I have no quality of life and used to be very active and now I can't do anything, not that I don't want to I just can't. Any help would be most appreciated. Maybe if someone lives in my area they can refer me to someone that can finally help me. Thanks to all of you so much for your help. Sorry is this is long, I just don't know what to do anymore. My pain is from head to toes.
Teens with fibromyalgia? I'm 18, and I've been diagnosed with fibromyalgia since I was 16. I'm working on a few non-medical ways of managing it, and I thought I would ask for second opinions of what works best. Yoga, pilates, swimming, walking? Massage therapy or acupuncture? Clinical psychology? Magnesium supplemants? Diet? And is there anyone else out there who is under 25, and suffering with fibromyalgia? Most people seem to be in the 30s and above age range. Are there any online support groups for under 25s? Ways I treat myself: Medical: I see a sports specialist, who deals with a lot of people who have fibromyalgia. I'm on a type of antidepressant, mirtazapine, which also serves as a muscle relaxant. Physical: My doctor suggested I try either massage therapy or acupuncture, to help with the muscle pain. I went for massage therapy, but I've since switched to acupuncture. I still see a massage therapist for relaxation, but I find that acupunture is really effective. I also try to do swimming and short walks regularly, and am just starting to learn yoga. I will also be starting pain management classes soon. Mental: I was diagnosed with anxiety and depreesion (mostly circumstantial) earlier this year, and have been getting counseling and clinical psychology to help deal with the pain and feelings that come with it. I'm thinking of starting up a forum for people with fibromyalgia, all ages. Please email me if you're interested!
Do you know any mothers in Texas, with fibromyalgia? I recently created an online support group for mothers in Texas who suffer from Fibromyalgia. If you or someone you know might benefit from this...please send them here: http://health.groups.yahoo.com/group/FibroMomsInTexas/
Is fibromyalgia really a disease? Like a REAL disease? My aunt claims she has it. She's ALWAYS talking about it. Fibromyalgia this, and fibromyalgia that. She goes to all these support groups, when my mom who had CANCER did not go to ONE support group. And shes always complaining about being in pain everyday, she just complains a LOT. She even has a handicapped sticker. I don't understand why she has one though, because she can walk throughout the mall all day shopping, but my dad can barely walk from the store to the car because of his back (he has a slipped disc) and HE doesn't have a handicapped sticker. And unless someone can truly prove to me that it is a real disease, I think its just a way for people to complain and get meds.
People with Fibromyalgia, how do you cope with your pain? I've suspected I have fibromyalgia for several years. I was officially diagnosed yesterday. I do not have health insurance and I have to go to a "reduced-fee clinic" and the doctor I saw didn't go into a lot of detail on how to live with this. He gave me a Rx for Tramadol for the pain. He told me to do stretches, keep my mental health in check, reduce stress, quit smoking, lose weight, and it might help to find a support group. That's about it. I'm having a pretty bad flare up and the Tramadol he gave me isn't doing much. If you have fibromyalgia, how do you deal with the pain? Is there/was there more that my doctor could have done? I'm really interested in hearing what other sufferers do to relieve their pain and tension.
Fibroymalgia support group? Is anyone interested in an online support group for fibromyalgia sufferers? I know that there are some out there already, but most seem to be either a place where someone selling a "cure" can hawk their wares, or a place where no one is ever allowed to complain about what they're going through and say "I need to vent to someone who understands what this is like." I'm talking about a message board, basically, where we can talk about what things work for us to reduce the pain, and what things help us get through the day despite the pain. Where we can get sympathy when we need to share our personal evil-doctor stories (or evil-relative, or evil-boss, or whatever) and know that other people have had the same problems. Where we can talk about the latest health news that has bearing on our particular condition. If there is already such an online support group, please let me know. Otherwise, I intend to start one. Let me know if you are interested.
how can i write to yahoo to fix my groups background colors...it won't work in order to change the colors.? my group is called ole hippies w/fibromyalgia a support group. thanks
It is about 95% certain that I have fibromyalgia. Is there a UK support group for this ailment.? I was able to put a possible name to the range of symptoms that I have been experiencing over the last 30 years, that doctors have dismissed as nothing because they don't know what it could be, after I was given a course of tablets for another problem and one of the 'side effects' was that it helped the symptoms of fibromyalgia. For the 3 months I was on the tablets the symptoms all but disappeared, then came back with a vengeance when I finished the treatment. I have tried looking this ailment up on the internet, there are some very goo societies set up to help sufferers but they are in the US. I was wondering if there was anything in the UK that was similar.
Fibromyalgia support in Plymouth UK, and the South West? Are there any support groups in Plymouth UK, or the South West, still running please? Also, is there anyone living with Fibromyalgia, in the same area, looking for support?
What is a good on line support group for Fibromyalgia? I am interested in finding a group to chat with.
I'm seeking a support group for fibromyalgia? I need a group of people who have the same condition that I do and /or a combination of other health related problems
How To Spread THe Word Quickly About Support Groups?? Hi, apart from posting wherever i can and advertising my new group for people that suffer from fibromyalgia/me/cfs/long term chronic pain support group. Any ideas will be most welcomed. We are based in Cornwall but really need help in spreading the word. Your help is most appreciated, thanks.
I am looking for a fibromyalgia organisation/support group in or around the swindon area.? I have moved to swindon and have chronic fibromyalgia. My old doctor was brilliant, but since moving the doctor I now have is to be frank worse than useless, his first suggestion when I saw him was to try and get me to see a psychotherapist. As he said that I do not need the medication that I am on and that all I need to do is to see the therapist a few times and I will start to see things from a different perspective. I know what I have got and I know how it affects me. I have had it for 20years. Just don't need some quack telling me its all in my head. Anyway enough ranting. lol. If anyone can help I would be more than grateful. Thanks LIZ
Is there a fibromyalgia support group here in New Zealand? I have it and was just wondering if there are any other Kiwis on here that have it too.
Can You Recommend a Fibromyalgia Online Support Group? I have FM and I'd like to find a good online support group. I only want suggestions from people who actually have FM and are members of an online community. I don't want to sound rude, but I could 'Google' this just as easily as anyone else. I'd just prefer to have a recommendation from someone who understands what I'm going through. Thanks!
Fibromyalgia support group? I'm a 23 year old college student and I've beem suffering from Fibromyalgia and I was wondering if anyone know of an online support group for people my age.
What Fibromyalgia support groups are located in Plymouth UK, and the South West? Are there any support groups in Plymouth UK, or the South West, still running please? Also, is there anyone living with Fibromyalgia, in the same area, looking for support? I would like to hear from people interested in raising awareness of FMS in the UK.
Fibromyalgia support groups in Mira Mesa? Does anyone know of fibromyalgia support groups in Mira Mesa, CA? Or-it could be chronic fatigue, or other illnesses like this?
Fibromyalgia Support Groups? I live in the Sacramento/Citrus Heights, CA area and would like to join a support group. I sent an email to one group, but the email address wasn't a good one. Does anyone out there know of any active support groups in my area??
I HATE SOMEONE HOW DO i STOP? I hate my sisters husband. He is a horrible person and he is really overweight and almost everyday i think I wish he would leave or worse I wish he would die. He will too if he doesnt start taking care of himself.He treats my sister awful. He hits her but makes sure not to leave marks.He calls her a whore and accuses her of being a lesbian because she talks to her freinds. My sister has an illness fibromyalgia. All of her freinds are from her support group. She has told him to leave but he wont and he threatens her all the time because He claims he knows some of her freinds use weed for their illness and he is going to tell the cops. She isnt using weed but thats his hold on her. She is on morphine.They have a kid too and she is 14 and hates her father because he does things like show up at the public pool screaming and makes her leave. I hate him.I feel no pity for him he makes us all miserable and my sister is somewhat delicate. Knowing he abuses her makes me want bad things for him I know what category Im posting in.I want spiritual advice.Whats wrong with that? How can I heal my heart of this hate? He weighs 400 pounds.Thats why it matters I keep thinking fine keep eating you will die.That is wicked of me.
I have a chronic illness. How do I get my husband to support physically and emotionally? I feel very alone.? I have been sick a long time. I was finally diagnosed with IC (interstitial cystitis) in 2000. I have also been diagnosed with chronic fatigue syndrome, IBS, fibromyalgia, and have all the typical symptoms associated with these disease groups or syndromes. I have the rarer type IC with Hunner's ulcers and all treatments have failed. I even have a sacral nerve stimulator implant, which is ineffective. My own urologist and family doctor have told me there is nothing more I can do now, except to manage the pain or have my bladder removed. My family is firmly against this. I am on lifelong medication, including antibiotics. My husband married me knowing I was sick. I also am a registered nurse, so I have been relegated to managing my own care, doctor visits, ER trips, etc. I have a two teens, one who has been in trouble with substance abuse (taking my IC meds, which are now locked). My other child has ADHD and depression, and always worries that something will happen to me (will Mom die?). I am, frankly, very depressed. I am always hurting inside my bladder or in my muscles. Because you can't SEE the illness, it is hard for my loved ones to empathize and understand.Everything(cleaning house, paying bills, getting groceries, cooking) is left to me, and I have given up trying to do it all. And as a nurse, I know people do not want to be around a sick person all the time. I am at the end of my rope. I asked my husband to please stop blaming me (I have a hard time complying with my IC diet, therefore my husband acts like I am doing this to myself. I did not give myself IC). I have asked him to get us help around the house, to call the doctors, to tell them he loves me, and he wants an answer, and what can we do? Even my parents don't understand. I don't WANT to be my own nurse. I NEED him and my family to speak up for me. I am so tired. I am crying right now. I don't think I will live a very long life. I have just gotten over a pseudomonas infection in my diseased bladder and am more tired than ever. My weight has crept up. I tend to be short with my family (because I am frustrated); in other words, I am not coping very well. What should I do? Thanks IRB. I have been down that road already. I am on an antidepressant. I even have a "Happy Lamp" to help with depression. I know it is perfectly normal to have depression with chronic illness. I am just very alone in dealing with my ilnness. Thanks anyway. MANNY- Yes, I DO believe in prayer. I have prayed, I have been annointed in oil, people have suggested that this may even be a result of sin. Oh, and I had a group of people at a church gather around and demand that any demon come out! I was too terrified to speak. You can see what good church has done for ME. I do, however, love God. People just don't understand. YOGI- I feel for you. We live in East Texas (the sticks), and medical care is subpar. I can't tell you how many times I have driven myself to Houston or Galveston trying to get some help. I am specifically looking for a urologist who does bladder nerve ablation (destruction of the nerves so I can at least not FEEL the pain). My urologist won't do it and says I have to locate a urologist at a teaching university that might do it. Mayo, UTMB, Baylor don't have this type of surgery available. I REALLY appreciate all of the immediate responses. I had to laugh a little, and THAT was great! It may help to know that my husband is 16 years older than me, has never had his own child, and also, I was a big breadwinner financially, until I had to quit full-time because of the disease progression. I didn't think any of that would matter, but maybe it does.
FED UP WITH MY LIFE, I really am not going to wig out and do something dumb but really I am bored with my life What do you do when you have had it with your everyday monotony? What keeps you on track or gets you back to who you are? I stopped school for a bit, but I am in the home stretch so life is good, I am going back to exercise my mind. Health problems! Very Bad! A lack motivation feel like depression is setting and some talk therapy is good, I do read and such but I sort of lost my charisma my energy/spirit, and how do you re-create yourself after this, I had a real rough ride so (fibromyalgia, same family as MS, it is real hard some days to even get out of bed, it really can be very painful on me and I am young), I know that has lots to do with it. I am single, a mother, which is great , thats a blessing What do you to occupy your time, I mean really, support group, reading club, blog sites, church, exercise, what keeps you ticking so your mind doesnt sit idle and how do you do a journal, where do you start, what's the best way that may have helped you or a loved one
Muscular/skeletal problems, please advise!? I was born with JRA and it progressed as I got older. When I was 12 I was permenantly in a wheelchair. But when I was 18, after my DPTP imunization, I presented as though I had Polio. I didn't, and every year I get worse. My large muscle groups (hips, thights, shoulders, back, abdomen) do not respond well, and have very restrictive movement, weakness, and pain. My muscles and joints cannot support me. I am in constant pain despite fentanyl. I have had a muscle biopsy for MD (neg.), evoke potentials for MS (neg.), and other many tests, none conclusive. I am soon to go in for another round of these tests, since it's been 10 years. I have had many diagnoses from ME, CFS, fibromyalgia, etc. But none of these have proved true due to presentation. I also am always exhasted, and have sleep apnea that does not respond to CPAP. I am asking anyone to give me some hint as to what might be wrong. I am desperate to know. If you want more info, please email me. I do have maintenance therapy to keep my range of movement (had it since I was little). Any more intense PT actually makes me worse in the long run. Some of the tests are by specialist, some by family doc. They think there may be something wrong with how my brain talks to my body. But no disease name.
i have seen so many people asking for help? it just gets me when I see someone saying "everything will get better". I have lived a life of hell for the past 35 years. I was taken away from my parents at 2. put into a home at 5. home was abusive. brother dies 8 years later in car accident. home finally shut down. multiple group homes. find mom. have more personal problems. then 1 year ago check up on her(she had fibromyalgia) since I was living with her to care for her found her passed away. I have no support. never learned what a friend was. No life is not getting better. I hate. Literally hate my life. I have no one. Zero support. I am on the highway to passing away. Please don't get mad at me. I am or have been crying and crying for over an hour now. I need to speak up about this. If you would like to give me advice please do. that made me laugh. no there isnt anyone I am attracted to. I wouldnt know the first thing aabout that. I do not like love and dont know how. try and live my life. I think love is learned. Yes God is my only refuge but geez this weight hurts so much as well as seeing my mom dead.
Fibromyalgia support group? Is there a fibromyalgia support group for kids whose mom has it? Or just parents in general
fibromyalgia support group? i would be interested in starting a fibromyalgia support group also looking for a christain female in her 40's to be a companion for shopping, going to the movies or just to get out of the house
Fibromyalgia? Does anyone know of good organizations that are working towards research and coping? What about research that is being done? What are your FM stories? No whiners please...I was diagnosed with FM 3 years ago, and I can't seem to find any activism going on towards finding relief/cures for this illness...every support group ends up being a bunch of people who can't stop complaining. I suffer from this debilitating illness just as much as the next person, but don't want to complain...I want to hear about success stories, treatments, people doing something to advance public education and get more research performed....this illness has progressed quietly long enough and it is time to get it out there in the public eye, like AIDS, MS, cancer...even asthma and arthritis have more public education and understanding. Anyone feel the same?
Need Fibromyalgia Volunteers!!? I am working with two others on a college research paper titled: "Fibromyalgia: Effects of Support Groups on Quality of Life" but we need a control group. That is, we need Fibromyalgia patient volunteers who DO NOT belong to any type of support group and/or online community. If any of you are willing or know someone who might be, please contact me here or email me: sweet_one227@yahoo.com The purpose of this study is not only to find the importance of support groups but also to raise FM awareness. Thank you so much!!
Does anyone have any info on how to treat fibromyalgia? I have tryed every treatment for the past 5 years.? I am desperate to find new solutions to control the symptoms. Is there a good support group I can join on the net?
Does anyone else with Fibromyalgia feel like your life has been taken away? I have suffered for many many years since i've been at least 15 with severe fatigue, low energy, heaviness in the limbs, weakness, headaches- now have become migraines. Burning muscle pain in my neck,shoulders and back. numbness in my arms and legs, crawling sensations and a list a mile long. After having every test done possible, visiting every kind of specialist- all rules they can't find anything and a dozen dr.'s say it's fibromyalgia and chronic fatigue. Now 38, married with kids my symptoms have grown worse- feels like MS or Lyme but still dr.'s tell me its fibro and tests are neg. It's sucks so much- I do not work. couldn't hold a job if i tried. I could sleep for days. I have no life, no friends, no one that understands what i'm suffering. I get tired very easily. Does fibromyalgia really make you feel this bad? I'm on the verge of divorce because my husband has boundless energy, is a compulsive runner, thinks i'm lazy - it's in my head, i get no emotional support and have tried to find groups near me with no luck. My teen girls are my only friends and someone to talk to, they understand and thankfully help with household chores and they are angry with my husband's selfishness" all about him" and his image. I guess a good way he can meet sexy women, cheat on his wife while i'm suffering with an illness and feeling so alone.
Is there any support groups here in North Bay,Ont Canada for Fibromyalgia? Yes am looking for a support group to go too for some help in dealing with this Fibromyalgia? So if anyone can help me out that would be really great.
Fibromyalgia support group in Anchorage Alaska? Would anyone know of a Fibromyalgia Support Group in Anchorage, Alaska?
Hi everyone, I have fibromyalgia and would like to know if there are any community groups in the Kings Lynn? Hi, I have fibromyalgia and am having to give up work due to this and would like to meet with some local people to help with support and guidance through this difficult stage of my life. Have lots of questions and really have no one to turn to for guidance. Mnay thanks for any assistance.
Anyone out there with Lupus, RA, Fibromyalgia, Neuropathy, Sjorgens, Raynaud's or Chronic Fatigue who needs a? Need someone with similar auto-immune diseases to talk to and form a support group for myself as I worsen. Hopefully I can help someone else along the way
Asperger's Syndrome self diagnosis? I'm 26 and I've found that quite a few of the symptoms of Asperger's Syndrome apply to me, but my psychologist says the inability to read body language, the uncomfortableness with eye contact (I try though), the taking things literally, the obsession with odd topics and hobbes only to usually drop them after a few months the hard time understanding common behaviors unless having them literally explained to me (like how far to stand from one one when talking).... Sorry, I'm a little frustrated. Anyway, he says that's all just my bipolar disorder. But nothing I read on that sounds like bipolar. I'm already on SSI for my bipolar and fibromyalgia, so short of feeling vindicated nothing would come of an official diagnosis. How accepting is the Asperger's community to self diagnosis? I've always felt 'wrong' and to finally understand WHY... I'd just like to know if I'd be turned away without going through the proper channels if I tried to go to support group meetings. I want to at least learn how to mimic normal behavior patterns. Would it be worth the cost to get a second opinion or see neurologist?
fibromyalgia support groups in the UK? My mum was recently diagnosed with fibromyalgia, and i was just wondering if there are any support groups that have meetings where we could go to find out more? We seem to know more about this condition than the doctor, but it would be nice to meet other sufferers who can share tips and coping methods etc. We live in East Yorkshire. Any help is gratefully appreciated, thank you!
Ok fit people, I could really use your help? I am a female college student, 100lbs overweight. I am looking for a really good weight loss plan that will help me with weightloss and consistency in workouts. While most of you would probably recommend general diet and exercise, I am a little more complicated with maintaining that routine. When I am doing this on my own, I tend to let a lot of things slide based on a sluggish day, pain, or depression. One thing I am good at is being reliable for other people. With a personal trainer for a month, I met with him every week, worked out and lost a little weight, but I couldn't afford to continue with him. Even without a trainer, in the past I've lost 30lbs on my own, but it came back because of really bad habits and going in and out of motivation. I also deal with chronic pain and fatigue, which two doctors believe to be fibromyalgia. Now that I can afford a trainer, even more, I would like an overall fitness plan, like weight watchers, jenny craig, or something with a good support group to help me continue losing the weight and keep it off. What would you recommend? Serious answers please. I know i'll get a few spammers, but hopefully some real people out there can help. I hate asking for help, but I think it's time for me to have all the help I can get. Thanks.
Is there a Fibromyalgia support group online or otherwise? Or a chronic pain support group? If you are dealing with either, how do you cope? I'm having a flair up and on top of everything else (difficulties) this just seems hopeless...
Group that helps Fibromyalgia & Chronic Fatigue Syndrome...? I have a friend who has both fibromyalgia and chronic fatigue syndrome. She has been denied disablitiy benfits, twice by letters and once where she had to go to a hearing. She is a really good person, in a very bad situatuion, not some lazy druggy trying to get free money. She just wishes for income so she can pay for medication, cost of living and college loans. The court says they won't even be able to make a decesion until 2012 or 2013, and then that still doesn't mean she'll get the money then, if she gets any. The question I have is are there any programs that will help, support, loan, or give her money or help so she can get a income, cheaper med.'s, anything etc. One preferably that specifically helps people with her conditions, she really likes horses to, so any program please. Thank you for reading, and helping!
Can I tell her to harden up.. politely? I have Fibromyalgia and Chronic Fatigue Syndrome and I have been unwell since I was 11, I'm now 21. I've been unable to do a lot things, but have done my very best and seem to some how get through things even though I'm in excruciating pain and so exhausted. A lot of it has been mind over matter and I just have to put the pain to one side and do my best. A girl I know, through a support group for young people with chronic pain, posts at least 3 times a day on her Facebook about how much pain she's in.. This was tonight's post "Pain is a pain in the ass! Im tryin 2 be positive & I'll never give up but this amount of pain is just crazy! It doesnt make sense how I can live & even type this while in such excruciating pain everywhere! I feel like shit 24/7 & hav 4 3 yrs! I shouldnt complain tho coz it cud b a lot worse ? I'll be ok, I hav my family, friends & music:) never take anythin 4 granted! I realize that more & more everyday?" She's only 15 but she sits in a chair all day and does nothing. Her parents give her a lot of attention every time she complains. Would it be out of line for me to email her and tell her that I know it sucks, I've been there, but you have to just do stuff even though it hurts. She's not a close friend, so I don't really care if she gets angry and doesn't want to talk to me anymore, but I think it might help her. Should I email her? Or her Mum and tell them my experience and how you just have to harden up basically..? Thanks.
What is a good name for a Fibromyalgia or chronic pain small group? I am beginning a small group at my church for people with Fibromyalgia and/or chronic pain syndromes. I am at a complete loss for a name. I was thinking something witty, but not corny that would catch the attention of fellow sufferers in a church group directory. This will be a social/support type group. Please keep it clean, and only serious replies appreciated. Thanks!
Are you interested in a Fibromyalgia Support Group on Facebook? I'm 23 and I have fibromyalgia. I've had it for almost a year and a half. I recently have been interested in joining a support group, to find community with others who also share my struggles, but a lot of places I look I only find people my parents age. I don't mind advice from those older than I, but I definitely think it's better to know people in my age rage/ area in life that I can relate to first. I know one girl around my age who has it and also is living with RA (rheumatoid arthritis). Anyways I started this group on Facebook called, " We're All In This Together." It's completely open to any young men or women living with Fibromyalgia, Chronic Fatigue, RA, or anything closely related. Please fill free to join. :)
Severe Back Pain, "Banding" Pain, please help or advise...? My doctors can't seem to figure out my specific condition, so I'm asking around to find out if anyone's had this problem, and/or knows viable treatment methods to deal with it. I'm 37 and frankly some days I hope I don't live to be 38. I work a work-from-home job where I have to sit a lot (tech support). I exercise when I can. I have been checked this year via detailed stress test and have been found to have an extra healthy, fully oxygenated heart. I had a slipped L5/S1 disc in my lower back in 2004, and have been dealing with chronic back pain ever since. I have pain in my shoulder blades all the time, and I get lower back pain if I lift too much. But what I'm about to describe is a separate type of pain, and very different. My problem is this, and it's hard to describe. It starts with a non-specific pain in my upper back, sometimes it feels like it's in my throat, sometimes it feels like it's in my upper back, or sometimes both. I've found no specific triggers for it except it seems to happen when I'm working (sitting at my desk chair). Gradually it gets worse, the pain in my rear ribcage, and it will radiate to my front side, to the point where even breathing hurts. I can get up and walk around, try and rub my own back against a corner, it gets some of what FEELS like tension out, but it just comes back in a few seconds after I sit back down or lie back down (and be still). At this point it's disturbingly bad. Painkillers don't stop it, at all. Sleep would stop it, but it's usually too bad at this point to even sleep if I do nothing about it. The only thing that stops it is prescription diazepam, which my doctor says can act as a muscle relaxant. But to be honest, I don't want to have to take this substance every day. The problem has evolved over the last several years from occuring once every half year to once every month to once a week...and in the last two weeks, it's been happening every other day and is beginning to worry me. The pattern is the same...much like a migraine sufferer, if I don't kill it early with the diazepam, it usually just spirals out of control until I sleep from exhaustion or self-medicate. All my doctor can tell me based on the evidence is: Sounds like muscle spasms to me. Well, yes, that's pretty obvious, but the question is why is it happening, is there a commonly associated medical condition with this, and when can I get myself out of it? I also have Type 2 diabetes, suffer from frequent morning cramps in my legs and feet (I always figured due to the injury). I also have been diagnosed with anxiety disorder (used to have panic attacks, that is what the prescription diazepam is for). I have thought maybe Fibromyalgia, but I think muscle groups are becoming involved in these events when they occur, and I don't know enough about Fibromyalgia to be sure. Advice from anyone would be appreciated, or even links to other discussion groups on this topic. Doctors are having problems figuring out what's wrong with me, and I don't want to keep living like this.
is there any fibromyalgia chat rooms/ support groups? im 16 and have fibromyalgia and having a really hard time dealing with it. is there somewhere i can go to please let me know.
Support groups for fibromyalgia in Southern Los Angeles, CA? Non profit groups for people w/ fibromyalgia in the Southbay Los angeles, California area.
